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External Resources

On this page, you will find resources ranging from projects to conferences to articles that are related to addressing disparities in the subpopulations of focus for this Learning Exchange. Many of the resources are ones that have been referred by our partners in the community, so please feel free to submit relevant resources for inclusion using the form at the bottom of this page.

END+DISPARITIES ACTION WEEK SUBMISSIONS

Ryan White HIV/AIDS Program recipient submissions to the National Quality Center call for ACTION WEEK around HIV health outcome disparities

View Submissions

California Department of Public Health

Christine Kibui of the California Department of Health recorded a video describing what her state is doing to address disparities in HIV care for youth aged 13-24, including the formation of a new statewide learning collaborative. This submission was featured in the June 15, 2017 webinar, Greater than the Sum of its Parts.

Community Health Care

Lara Jackson submitted an overview of the multi-pronged approach to addressing disparities in HIV health outcomes in her clinic in Tacoma, WA. In this submission, Lara shared her viral suppression span across groups that was used to drive discussion in provider meetings and to develop need for staff training. This submission was featured in the June 15, 2017 webinar, Greater than the Sum of its Parts.

Howard-Brown Health

Sandra Candelaria of Howard-Brown Health recorded a video describing what her Chicago-based Part C and D funded agency is doing to address disparities in HIV care. This submission was the winner of the special prize drawing for ACTION WEEK submissions – congratulations!

Illinois Department of Health

Marleigh Voigtmann and Janet Nuss of the Illinois Department of Health shared their progress in addressing disparities in HIV care across Illinois in their submission for ACTION WEEK.

MOCAN (Missouri’s Cross-Part Collaborative State Team)

Jamie Matney from the Kansas City Health Department and Corinne Kritikos from KC CARE Clinic made a dual submission for ACTION WEEK on behalf of MOCAN, their statewide cross-part collaborative clinical quality management team).

Stony Brook University

Katelin Thomas submitted a description of the approach taken at Stony Brook University on Long Island in New York. The process was almost completely consumer-driven from review of clinical and experiential data to the identification and roll-out of specific interventions intended to directly and indirect the underlying causes of disparities in HIV health outcomes. This submission was featured in the June 15, 2017 webinar, Greater than the Sum of its Parts.

University of Rochester Medical Center

Bryan Klotz of the University of Rochester Medical Center recorded a video describing what his Rochester, NY-based agency is doing to address disparities in HIV care.

Other Submissions

A number of other HIV service organizations provided shorter descriptions of what they have done to address disparities in HIV health outcomes. Submissions were submitted by CCCRSQ in Sarasota FL, the District of Columbia Department of Health in Washington DC, Washington University of St Louis in St Louis MO, and Evergreen Medical in Buffalo NY.

PROJECTS OF INTEREST

A listing of relevant projects that have been developed in the field ranging
from interventions to indices to toolkits
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View Projects

Positive Links

Positive Links is a smartphone app developed by the University of Virginia that supports people living with HIV with HIV education and management tools, wellness promotion strategies, and support through a positive virtual community, self-monitoring of adherence, wellness behaviors, and warm technology that extends care beyond clinic visits.

Sin Verguenza

“Sin Verguenza (Without Shame)” is a telenovela web-series created by AltaMed that focuses on the impact of HIV on a Latino family. The series’ goal is to tackle the stigma and shame associated with HIV in Latino communities. Currently in its second season, episodes are available in English and Spanish, and viewers can enter a raffle for gift cards upon watching the episodes.

We Are Family

We Are Family is a campaign run by Greater Than AIDS that focuses on helping family and friends of people living with HIV/AIDS provide support and love.  Its resources–available in both English and Spanish–include a series of inspiring videos and information on local HIV testing and services.

Rural HIV/AIDS Prevention and Treatment Toolkit

The Rural HIV/AIDS Prevention and Treatment Toolkit consists of 7 modules that focus on creating and sustaining successful HIV/AIDS programs in rural communities. The toolkit includes evidence-based models and resources to guide the development of new programs.

Healthcare Equality Index

The Healthcare Equality Index is a national benchmarking tool that promotes inclusive, equitable care for LGBTQ patients and employees at healthcare facilities around the country. The Index includes an interactive map that features facility ratings by location.

The People Living with HIV Stigma Index

The People Living with HIV Stigma Index is an international tool that aims to address stigma related to HIV by measuring and tracking trends in stigma and discrimination around the world. More than 90 countries and 100,000 people living with HIV have been involved in this project.

Health Policy Project

The Health Policy Project focuses on utilizing policy, advocacy, finance, governance, and capacity building to improve maternal health, HIV, and family planning and reproductive health. The project is international in scope and has worked across the Americas, Europe, Africa, and Asia to improve HIV policies and reduce HIV stigma and discrimination.

Antiretroviral Treatment and Access to Services (ARTAS) Program

ARTAS – a program developed by Family First Health – is a multi-session intervention that aims to link recently diagnosed individuals with HIV to medical care after receiving test results, to retain those who struggle with adherence, and to bring patients back into care who have fallen out of care.

Independent Living Research Utilization (ILRU) 

The ILRU program is a national center that provides training, research, and technical assistance on independent living for persons with disabilities. ILRU manages a list of Centers of Independent Living (CIL) nationwide, which work on HIV in persons with disabilities with community partners.


Tools of Interest

A listing of relevant tools and databases to assist in data analysis

VIEW TOOLS

Prioritizing QI Interventions Using an Interactive Scatterplot 

Trillium Health has developed a methodology to help with ranking and prioritizing different potential interventions. Using group feedback, the interventions are assessed for impact and feasibility before being plotted in an interactive scatterplot to identify the top interventions of choice.

Care Continuum Template Tool

The Massachusetts HIVQUAL Regional Group has developed a tool to help organizations create customized HIV care continua. Just enter data for each performance measure into the tool, and it will automatically generate the matching care continuum.

Substance Abuse and Mental Health Data Archive (SAMHDA)

The Substance Abuse and Mental Health Services Administration (SAMHSA) and RTI International have launched the updated SAMHDA website with numerous data study sets for public use.

National Registry of Evidence-based Programs and Practices (NREPP) 

Developed by SAMHSA, the NREPP is a database of evidence-based behavioral health interventions that are available for implementation. The NREPP also has a Learning Center with resources to help in the process of selecting and implementing interventions.

Toolkit on Intimate Partner Violence

Developed by the National Health Resource Center on Domestic Violence, this toolkit on intimate partner violence focuses on helping community health centers work with domestic violence survivors and advocates.


Articles of Interest

A listing of research articles on HIV care for the four subpopulations of focus

View Articles

HIV-Related Stigma Among Healthcare Providers in the Deep South

Stringer et al. (2015) examine HIV-related stigma and attitudes among healthcare workers in Alabama and Mississippi in order to improve quality of care for people living with HIV (PLWH).

Improving Cultural Competence To Reduce Health Disparities

The Agency for Healthcare Research and Quality (AHRQ) has published a systemic review that provides a comprehensive overview of existing interventions targeting cultural competent healthcare for LGBTQ populations, people with disabilities, and minority populations.

YOUTH

A Randomized Controlled Trial of Personalized Text Message Reminders to Promote Medication Adherence Among HIV-Positive Adolescents and Young Adults

Garofalo et al. (2016) implemented a daily text messaging intervention to address ART adherence in HIV-positive adolescents and young adults. Self-reported adherence improved significantly and was maintained post-intervention.

The Impact of Youth-Friendly Structures of Care on Retention Among HIV-Infected Youth

Lee et al. (2016) examine how youth-friendly clinic structures, such as evening hours, adolescent health-trained providers, and online communication, affect retention in care.

Information, Motivation, and Behavioral Skills of High-Risk Young Adults to Use the HIV Self-Test

Brown et al. (2016) analyzed the potential for HIV self tests as a risk reduction tool among young adults, conducting surveys and interviews with young participants to assess the informational deficits, motivations for use, and behavioral skills needed.

Challenges to HIV Management Among Youth Engaged in HIV Care 

Shacham et al. (2016) examined factors and barriers that affect ART adherence in young adults, particularly viral suppression and STI testing.

Families Matter: Social Support and Mental Health Trajectories Among Lesbian, Gay, Bisexual, and Transgender Youth

McConnell et al. (2016) conducted a longitudinal study of LGBT youth (aged 16-20) to examine the relationship between different forms of social support and psychological distress.

LGBTQ Youth’s Perceptions of Primary Care

Snyder et al. (2016) surveyed LGBTQ youth on their experiences with primary care physicians and areas for improvement. Most of the participants felt that their health care providers needed to be more aware of their concerns and needs.

Meeting the Needs of Sexual and Gender Minority Youth: Formative Research on Potential Digital Health Interventions

Steinke et al. (2016) surveyed sexual and gender minority youth to assess how best to meet their health and sex education needs through online interventions, since these youth engage in significant online activity.

Sexually Transmitted Infection Testing Among Adolescents and Young Adults in the United States

Cuffe et al. (2016) explored national rates of STI testing among youth and reasons for not testing, such as lack of risk or concerns regarding confidentiality. Many of the participants never had a STI test, and females were more likely to have been tested previously compared to males.

MSM OF COLOR

HIV Testing Practices and Interest in Self-Testing Options among Young, Black Men Who Have Sex with Men in North Carolina

Hurt et al. (2016) surveyed uninfected, young black MSM about their self-testing behavior and practices. Those who were aware of the self tests were more likely to test and to ask sex partners about HIV status.

Reactions and Receptivity to Framing HIV Prevention Message Concepts About Pre-Exposure Prophylaxis for Black and Latino Men Who Have Sex with Men in Three Urban US Cities

Mimiaga et al. (2016) surveyed black and Latino MSM across the US for their perceptions of messaging to promote PrEP awareness in terms of comprehensibility, credibility, and relevance.

HIV Testing and Outcomes among Hispanics/Latinos – United States, Puerto Rico, and U.S. Virgin Islands, 2014

Rao et al. (2016) examined CDC-funded HIV testing programs nationally to determine rates of testing and linkage to care among Hispanic/Latino populations.

Healthcare Provider Contact and Pre-exposure Prophylaxis in Baltimore Men Who Have Sex With Men

Raifman et al. (2016) examined factors that affect PrEP awareness among MSM in Baltimore. Some of the factors include healthcare contact, HIV and STI testing, and receipt of condoms from community-based organizations.

Socioeconomic Disconnection as a Risk Factor for Increased HIV Infection in Young Men Who Have Sex with Men

Gayles et al. (2016) analyzed the relationship between socioeconomic disconnection (defined as a lack of engagement in educational/employment opportunities) and HIV status and risk.

“Let Me Help You Help Me”: Church-based HIV Prevention for Young Black Men who have Sex with Men

Powell et al. (2016) surveyed young black MSM to help develop strategies for church-based HIV prevention. Participants suggested addressing stigma against homosexuality as well as addressing universal sexual health promotion.

Risk Factors Associated With Repeated HIV Testing Among Internet-Using Men Who Have Sex With Men

Johnson et al. (2016) followed a cohort of MSM who were given at-home specimen testing kits for a year and analyzed the relationship between testing and behavioral factors.

Implementation of Preexposure Prophylaxis for Human Immunodeficiency Virus Prevention Among Men Who Have Sex With Men at a New England Sexually Transmitted Diseases Clinic

Chan et al. (2016) implemented a PrEP education intervention for MSM at a STD clinic and assessed their interest in and initiation of PrEP following the intervention.

Engagement of Gay Men and Other Men Who Have Sex with Men (MSM) in the Response to HIV: A Critical Step in Achieving an AIDS-Free Generation

Stahlman et al. (2016) explore the social, biological, behavioral, environmental, and structural factors behind MSM risk for HIV infection and transmission as well as different prevention strategies.

AFRICAN AMERICAN & LATINA WOMEN

Centers for Disease Control and Prevention-Funded Human Immunodeficiency Virus Testing, Positivity, and Service Delivery among Newly Diagnosed Women in 61 Health Department Jurisdictions, United States, 2014 

Seth et al. (2016) analyzed data of newly diagnosed women across the country and found that Black and older women were more likely to test positive and become newly diagnosed.

Church-Based HIV Screening in Racial/Ethnic Minority Communities of California, 2011-2012

Williams et al. (2016) investigated a church-based stigma reduction and HIV testing program as a method of reaching and screening at-risk people who had not been tested previously.

HIV Testing Among Black and Hispanic Immigrants in the United States

Ojikutu et al. (2016) analyzed data from the National Health Interview Survey (2007-2010) and looked at differences in HIV testing rates among various immigrant populations.

TRANSGENDER PEOPLE

Behavioral Interventions to Prevent HIV Transmission and Acquisition for Transgender Women: A Critical Review

Garofalo et al. (2016) examined the existing literature on HIV prevention interventions for transgender women, looking at different risk factors and behavioral models.

The Mental Health of Transgender Youth: Advances in Understanding

Connolly et al. (2016) conducted a literature review of articles related to mental health in transgender youth, finding that transgender youth have higher rates of suicidality, depression, self-harm, and eating disorders compared to peers.

Diagnosed HIV Infection in Transgender Adults and Adolescents: Results from the National HIV Surveillance System, 2009-2014

Clark et al. (2016) analyzed data from the National HIV Surveillance System in order to determine rates of new HIV infection for different transgender populations.

Conferences/Events of Interest

A listing of upcoming conferences around the country related to HIV and health disparities

Presentations of Interest

A listing of presentations given at conferences and/or other events related to disparities in HIV care

View Presentations

Addressing Social Determinants to Improve Linkage-to-Care and Retention for HIV Prevention and Treatment

This presentation by Dr. Viraj Patel focuses on the impact of social determinants of health on HIV linkage and retention in care as well as the different screening tools and implementation strategies for social determinants of health.

2017 Annual Bay Area HIV Health Disparities Symposium

This annual HIV Health Disparities Symposium is hosted by the Forum for HIV Research and involves participants from across the Bay Area. This link includes a description of the event, the abstract listing, and all the posters are available for download. Take a look at this exciting repository of learning from the Bay Area to see what translates into your work in your region.

Ryan White 2016 Conference 

The 2016 National Ryan White Conference on HIV Care & Treatment is the premier conference for comprehensive HIV care and treatment, sponsored and funded by Health Resources and Services Administration’s (HRSA) HIV/AIDS Bureau (HAB). It took place on August 23 – 26, 2016 in Washington, D.C., and the 2016 conference theme was Forward Momentum: Accelerating Access. Optimizing Care. Transforming Public Health. Below are select presentations of interest from the 2016 Ryan White Conference, organized by topic.

RETENTION IN CARE

VIRAL SUPPRESSION

DISPARITIES IN HEALTH CARE

CONSUMER INVOLVEMENT

TRANSGENDER PEOPLE

MSM OF COLOR

YOUTH (AGES 13-24)

AFRICAN-AMERICAN & LATINA WOMEN

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