So you’re an architect.
This online database will give you all the resources you need to be able to learn and function in the role of a Partners in+care architect. This document acts as a guide to allow you to easily sift through and find the specific information compiled by qualified and knowledgeable peers that you are looking for.
Building Personal Quality Management Capacity
The first step in becoming an Architect is building your own capacity for quality improvement including understanding what quality is, how quality fits into the Ryan White HIV/AIDS Program, a general understanding of performance measurement, and the language or lingo of the quality world. Each of the following resources will help provide an overview of the basics. As you progress further into specific roles of engaging others in quality or supporting a quality team, you will need to review more specific resources to help drill down on the details of both quality and engagement.
- Quality Improvement Made Simple
- Guide to Consumer Involvement
- National Quality Forum – ABCs of Measurement
- National Quality Forum – Quick Reference Guide (Glossary Link known as “Phrase Book”
- Recommended Quality Academy Tutorials:
Participating on a Clinical Quality Management Team
Once you have built your personal capacity for quality improvement you may be ready to serve on a quality improvement committee or team helping to improve care in your clinic, your region, or your state. Quality improvement is a process, which means you will need to understand more about the mechanics of improvement to be an effective team member. Understanding how we measure our care, our systems, and our improvement efforts are key to successful improvement efforts. The following resources will help you understand more of the quality process itself.
- Overview of Quality Improvement Methodology (How we improve our care system)
- HRSA/HAB HIV Indicators (How we measure our care)
- Organizational Assessment for Quality (How we measure our system)
- AHRQ Tutorials on Quality Measures
- Recommended Quality Academy Tutorials:
- Quality Academy Tutorial # 5 – Topic: Clinical Quality Management Plan
- Quality Academy Tutorial # 8 – Topic: Choosing Quality Measures
- Quality Academy Tutorial # 11- Topic: Using Teams to Improve Quality
- Quality Academy Tutorial # 12 – Topic: How to Get Started with Quality Improvement Teams
- Quality Academy Tutorial # 13 – Topic: PDSA Cycle
- Quality Academy Tutorial # 14 – Topic: Using Quality Improvement Tools
Building a Consumer Quality Community
Quality Improvement is a process that demands the involvement of stakeholders, which includes Persons Living with HIV. Many persons measure their care by how it feels but quality is also interested in more concrete health outcomes and service delivery and design. By fixing the system of care, quality seeks to improve the lives of patients. Understanding how we fit into the health and healthcare system is crucial to gaining critical feedback for the design of quality projects. You may find that you need to build the capacity of other persons in your community to help support more meaningful engagement and improve the feedback loop. The following resources can help you understand the conceptual frameworks and strategies to enhance the involvement of PLWH in quality as well as train other patients to be more involved in the quality of their own care.
- Making Sense of Consumer Engagement – The ECHC Framework
- Greater Involvement of People with AIDS (GIPA)
- Consumer LINC Project – Strategies to Involve PLWH
- Making Sure Your HIV Care is the Best It Can Be
Participating on a CAB
Consumer Advisory Boards are the most common structures used to solicit feedback on Ryan White program services. CABs have changed over time serving various functions throughout the history of the implementation of the Ryan White HIV/AIDS Program legislation. Several tools have been developed to support the establishment of sustainable and effective CABs. There is an incredible opportunity to tap into the networks of existing CABs (as well as start new CABs) and to use these structures for quality specific feedback. Recruiting representative samples of patients and building community capacity for quality are key to CABs functioning in the healthcare system of today – which is more and more calling on patients to help in the design, redesign, and evaluation of services for improvement. The following resources will help you start, evaluate or refine your current or future CAB.
- CAEAR Coalition – Caring for CARE Act Planning Bodies
- Getting it Right – A Self-Assessment for CABs
- Getting it Started – A Beginner’s Guide to CABs
- Massachusetts Department of Health Statewide Consumer Advisory Board Sample
- Institute for Patient and Family Centered Care – Creating Patient and Advisory Councils
- Decisional Resources – Managing Discussion and Reaching Decisions
- NQC Quality CAB Guide – contains sample agenda, minutes and activities